{"id":58,"date":"2025-02-02T03:05:08","date_gmt":"2025-02-02T03:05:08","guid":{"rendered":"https:\/\/www.sightednon-24.org\/?page_id=58"},"modified":"2025-02-05T05:45:05","modified_gmt":"2025-02-05T05:45:05","slug":"easy-ways-to-raise-awareness-for-sighted-non-24","status":"publish","type":"page","link":"https:\/\/www.sightednon-24.org\/?page_id=58","title":{"rendered":"Raising Awareness for Sighted Non-24"},"content":{"rendered":"\t\t
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Special thanks to Andrew Cowen for contributing\u00a0to this article.<\/em><\/p>\n

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Sighted Non-24 Sleep-Wake Disorder isn\u2019t well known, even by doctors. Raising awareness is how we will improve the diagnosis and treatment of Non-24. Currently, those who know about Non-24 may not realize sighted people can develop it. This may be the only disorder where people have been discriminated against because they can see<\/em>.<\/p>\n

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Even our friends and doctors may unintentionally gaslight or invalidate the severity of Non-24 by saying things like, \u201cYeah, I have a hard time falling asleep sometimes, too.\u201d But Non-24 isn\u2019t just the inability to fall asleep sometimes.\u00a0It\u2019s a complete deviation in a normal rhythm that is deeply systemic and difficult to manage.<\/strong> Raising awareness is the only way to help people understand the difference between occasionally having trouble sleeping and a systemic inability to entrain to a 24-hour day.<\/p>\n

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So, here\u2019s what we can do to help raise awareness for this rare and incredibly difficult condition:<\/p>\n

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Call Vanda<\/h2>\n

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Call Vanda Pharmaceuticals and ask them to be vision-inclusive in their advertising for Hetlioz<\/strong>. Simply let them know there are sighted people with Non-24 and that people like us deserve representation, too.<\/p>\n

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Only featuring blind people in their advertising makes it difficult for sighted patients to get a prescription for Hetlioz. Doctors watch ads, too, and if they get the impression Non-24 only occurs in blind people, sighted patients my struggle to get diagnosed.<\/p>\n

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Call them 24\/7 at:\u00a01-855-856-2424\u00a0\u00a0<\/strong><\/p>\n

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Contact Local News<\/h2>\n

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Contacting your local news can allow you to highlight the oddness, rarity, and difficulty of Non-24.<\/strong>\u00a0This option is best for people who don\u2019t mind being open about having Non-24 as the news may want to interview you. This is especially important around November 24th for Non-24 Day or Rare Disease Day (February 28th\/29th).<\/p>\n

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Get Featured on our Social Media<\/h2>\n

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Send us your story.<\/strong>\u00a0We want to hear about how you (or your loved one) developed Non-24, how you were diagnosed, or how Non-24 affects your life. Help us show the world what it\u2019s like to have Non-24.<\/p>\n

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Contact us HERE<\/a>.<\/p>\n

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Send Postcards<\/h2>\n

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We will have a page with print media COMING SOON. <\/strong>All you will have to do is print, stamp, and send them. Using card stock or having these printed at a local printer is best. If you don\u2019t have a local printer, Vistaprint or similar can be used. These cards can be sent to sleep organizations, sleep clinics, neurologists, GPs, governmental organizations, and more.<\/p>\n

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Raise Awareness on Rare Disease Day<\/h2>\n

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Rare Disease Day<\/a>\u00a0is February 29th on Leap Years and February 28th other years.<\/em><\/p>\n

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Why do we advocate for Sighted Non-24 on Rare Disease Day?<\/p>\n

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Non-24 is classified as a rare disease and is featured on the\u00a0National Organization for Rare Disorders<\/a>\u00a0website; they claim, \u201cNon-24 occurs in 55-70% of completely blind people, but also occurs in an unknown number of sighted people.\u201d We do not know how many Sighted Non-24 patients exist because there is so little research. Doctors, too, may often fail to recognize that a sighted person can have Non-24.<\/p>\n

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Non-24 is typically due to a completely blind person\u2019s inability to sense light. Without light cues, the Circadian Rhythm is thrown off its normal 24-hour track. In most cases, a person\u2019s sleep shifts forward around the clock.<\/p>\n

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But in Sighted Non-24, the causes are much more varied and unclear.
We want sleep doctors, neurologists, medical professionals, and people around the world to recognize that sighted people can have Non-24, too.
Simply because a disease is rare does not mean it doesn\u2019t exist. According to\u00a0Global Genes<\/a>, 1 in 10 Americans lives with a rare disease.<\/p>\n

Raise Awareness on Non-24 Day<\/h2>\n

The official Non-24 Awareness Day<\/em> is November 24th. While most of the world uses the international date format day-month-year, the U.S. uses month-day-year. This date was chosen for the N in November and the 24th day, making it N-24. This is another great date to use to help raise awareness, especially when contacting press agencies.\u00a0 \u00a0<\/p>\n

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Do you know of any other ways to help raise awareness?
Let us know!<\/h2>\n

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Special thanks to Andrew Cowen for contributing\u00a0to this article. Sighted Non-24 Sleep-Wake Disorder isn\u2019t well known, even by doctors. Raising […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-58","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.sightednon-24.org\/index.php?rest_route=\/wp\/v2\/pages\/58","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.sightednon-24.org\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.sightednon-24.org\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.sightednon-24.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.sightednon-24.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=58"}],"version-history":[{"count":10,"href":"https:\/\/www.sightednon-24.org\/index.php?rest_route=\/wp\/v2\/pages\/58\/revisions"}],"predecessor-version":[{"id":321,"href":"https:\/\/www.sightednon-24.org\/index.php?rest_route=\/wp\/v2\/pages\/58\/revisions\/321"}],"wp:attachment":[{"href":"https:\/\/www.sightednon-24.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=58"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}